The Story
I was born in the Colombian Andes, near the Venezuelan border, with a bilateral cleft lip. Throughout my childhood and early adulthood, I underwent thirteen reconstructive surgeries.
Being born with a cleft lip is simply the world I have always known. It has always been part of my experience of being human.
Over time, that experience became part of my artistic language. Through painting and drawing, I began exploring the beauty and individuality of the human face, with the cleft lip becoming a central element in my work.
As my art traveled and my story reached others, I began meeting people who shared similar experiences — adults born with cleft lip and palate, families seeking support, doctors, and friends who wanted to be part of something meaningful.
Through these connections, I realized that something larger was possible: a way to support others born with cleft lip and palate. Slowly, through those relationships, the foundation began to take shape.
Why It Is Called the "Leporinos Foundation"
The name Leporinos comes from my own experience.
In many places, especially in the medical world, terms like cleft lip are preferred, and words such as harelip or leporino are often avoided because they may carry negative connotations. Historically, the English word harelip compares the condition to the split lip of a hare, which is why many medical organizations discourage its use today.
My story, however, grew in a very different context.
I was born in a remote region of Colombia, where the word leporino is simply the way many people describe this condition. Sometimes it can be used carelessly, and sometimes even unkindly. But I also learned that language alone does not define who we are.
As a patient, I am the one who walks into the world with the scars on my face. I am the one who lives this experience every day, far beyond the hospital walls. For me, the journey of surgeries and healing has already been demanding enough. I do not believe that others should decide which words have the power to define me.
Instead of rejecting the word, I chose to reclaim it.
For me, what matters most is not how others name a condition, but how we choose to live our own stories.
Leporinos transforms a word that once carried discomfort into something I claim with pride, a symbol of identity, resilience, and beauty.
Through my art and through the foundation, I hope to invite others born with cleft lip and palate to do the same: to own their story and write it in their own way.
We cannot change the circumstances we were born into. But we can decide how we live our lives, how we see ourselves, and how we choose to move through the world.
And that freedom, the freedom to define our own story, is something no one else should take away.
Art + Community
Today, the Leporinos Foundation brings together adults born with cleft lip and palate, families seeking guidance, doctors, artists, and friends who want to support this community.
Some people join looking for support, a conversation, advice, or guidance during a difficult moment. Others join to offer their experience, knowledge, or friendship.
Through creative projects, collaborations, and events, my art helps bring these connections to life. Businesses and organizations sometimes collaborate by creating campaigns using my artwork to raise awareness and support specific initiatives of the foundation. I also collaborate with other foundations, supporting their projects by sharing my art and helping bring attention to their work.
The foundation is largely supported through the sale of my artwork and products created from my work, along with donations from individuals who choose to support specific cases or projects.
Through these connections, friendships grow, ideas are shared, and when a project or case appears, people come together to help.
In this way, the network continues to grow, one relationship at a time.
Get involved
I cannot do this work alone, and I am deeply grateful for the friendships that make it possible. The foundation is not a large institution — it is simply an artist and a growing community of people who believe that helping others is one of the most meaningful things we can do.
Some people support the foundation through donations. Others offer their time, knowledge, or professional expertise. Many simply join the network and stay connected, ready to help when needed.
If you would like to support the foundation, you are welcome to make a donation or leave your name and contact information so we can reach out when a project or a specific case needs support.
Because in the end, this work is built on friendship, collaboration, and the simple belief that we can make the world a little better one smile at a time.